Saturday, April 24, 2010

JXG CHAMPS (30 week old)


Becoming aware of other family’s JXG stories has been one of the most crucial components in accepting my baby’s condition. When we just received the news of Santiago’s diagnosis and we started to investigate what the doctors meant by a “rare disease”, a horrible feeling of isolation and fear came upon us. I remember reading medical papers and explaining what was happening to us to other people and wishing there was another human being that I could talk to and had gone through the same. I am not exaggerating when I tell you that it is with tears of joy that I announce today the launch of our “JXG Champs” section. I know from experience that it is not an easy step for any of the parents to open up to the world and post their child’s journey with JXG. We give a lot of thought to the risks and rewards involved in the process and it is not a decision that can be made lightly. We all want to support each other and help other families struggling with this disease, but we must protect our kid’s privacy and we know we are running the risk of our intentions being misinterpreted or having people feel sorry for us. Yet at the end, we bet on the bright side of life. It took a lot of effort and courage from many people to be where we are today and I do not take it for granted. My hat is off to each of the families that share the story of their little hero. Their love and relentless fight cause nothing but admiration, respect and optimism in my heart. I hope it does the same for you!

*My deepest gratitude to Carolina Soza who created this beautiful logo for our group.

25 comments:


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    5. DIVORCE AND MARITAL BREAKTHROUGH

      It all started when my husband cheated on me with another woman unknowing to him that the woman is a wizard, the woman castes a spell on my husband which made my husband change his feelings towards me and the kids and broke our 6 years marriage. i was confused and stressed because of the pains of being a single mother, when i called a friend and explained my marital challenges to her, she instructed and directed me to contact a great powerful spell caster called Dr. Ugo Wonders living in Florida. i contacted Dr. Ugo and explained my problems, he assured me his help and it was 100% guaranteed. i provided the materials for the spell and in 48 hours, after Dr Ugo Wonders of generalspelltemple@gmail.com finished casting the spell, my husband was free from the evil woman spell and he came back home to us a day after begging us to forgive him. i was so shocked and short of words and here i am today happily testifying so the world can know how this great man helped me with his real powerful spell.
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      DIVORCE AND MARITAL BREAKTHROUGH

      It all started when my husband cheated on me with another woman unknowing to him that the woman is a wizard, the woman castes a spell on my husband which made my husband change his feelings towards me and the kids and broke our 6 years marriage. i was confused and stressed because of the pains of being a single mother, when i called a friend and explained my marital challenges to her, she instructed and directed me to contact a great powerful spell caster called Dr. Ugo Wonders living in Florida. i contacted Dr. Ugo and explained my problems, he assured me his help and it was 100% guaranteed. i provided the materials for the spell and in 48 hours, after Dr Ugo Wonders of generalspelltemple@gmail.com finished casting the spell, my husband was free from the evil woman spell and he came back home to us a day after begging us to forgive him. i was so shocked and short of words and here i am today happily testifying so the world can know how this great man helped me with his real powerful spell.
      To every one with marital problem, divorce issues, lost lover or any relationship related issues, you can contact Dr. Ugo wonders the ultimate spell caster via his email address generalspelltemple@gmail.com or call his mobile number directly on +13863369876

      http://generalspelltempleblog.wordpress.com

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  3. i am here to give testimony of how i got back my husband, we got married for more than 9 years and have gotten two kids. thing were going well with us and we are always happy. until one day my husband started to behave in a way i could not understand, i was very confused by the way he treat me and the kids. later that month he did not come home again and he called me that he want a divorce, i asked him what have i done wrong to deserve this from him, all he was saying is that he want a divorce that he hate me and do not want to see me again in his life, i was mad and also frustrated do not know what to do,i was sick for more than 2 weeks because of the divorce. i love him so much he was everything to me without him my life is incomplete. i told my sister and she told me to contact a spell caster, i never believe in all this spell casting of a thing. i just want to try if something will come out of it. i contacted Zuma Zuk for the return of my husband to me, they told me that my husband have been taken by another woman, that she cast a spell on him that is why he hate me and also want us to divorce. then they told me that they have to cast a spell on him that will make him return to me and the kids, they casted the spell and after 1 week my husband called me and he told me that i should forgive him, he started to apologize on phone and said that he still live me that he did not know what happen to him that he left me. it was the spell that he Zuma Zuk casted on him that make him comeback to me today,me and my family are now happy again today. thank you Zuma Zuk for what you have done for me i would have been nothing today if not for your great spell. i want you my friends who are p***ng through all this kind of love problem of getting back their husband, wife , or ex boyfriend and girlfriend to contact spiritualherbalisthealing@gmail.com or call +2349055637784. and you will see that your problem will be solved without any delay.

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  4. I was hurt and heart broken when a very big problem occurred in my marriage seven months ago, between me and my husband . so terrible that he took

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  5. Hello i am out here to spread this good news to the entire world on how i got my wife back.I was going crazy when my wife left me for another man last month,But when i meet a friend that introduce me to DR GBOJIE the great messenger to the oracle that he serve,I narrated my problem to DR GBOJIE about how my wife left me. He only said to me that i have come to the right place were i will be getting my heart desire without any side effect.He told me what i need to do,After it was been done,In the next 2 days,My wife called me on the phone and was saying sorry for living me before now and also in the next one week after my wife called me to be pleading for forgiveness. I am so happy and overwhelmed that i have to tell this to the entire world on how DR GBOJIE help me grant my heart desire. If you need any kind of help contact DR GBOJIE at the following email address: gbojiespiritualtemple@gmail.com or call +2349066410185 He also cast so many spell like,
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    ReplyDelete
  6. Hello, AM Lisa by name, I am testifying about Dr. Ken the
    Great herbalist, who has the cure for all diseases, who cured me the
    HIV disease, even if I have included it, went through the different website seen
    Different testimonials about different herbalists that was like, "many people
    It has the cure of HIV because people continue to suffer its consequences "
    I thought about it, so I got in touch with Dr. Ken by email
    I do not think much, I just wanted to give it a try, he replied.
    Mail and you need some information for me, then I sent you, you prepared
    Cured and shipped via UPS courier, I was told it would take 3-4 days
    Before receiving the package, 3 days later I received the package and started
    Take the medications prescribed by him after 7 days of taking
    Medication, I went to a test, I tried the HIV NEGATIVE.
    I give thanks to my faithful God. IF YOU ARE NEEDED You will be healed, put it yourself
    Contact Dr. Ken in whats-app .. whats, or call +2349054872932, email it
    kakutaspellz@gmail.com

    (THIS TYPE OF DISEASES BABA SPECIALIZED IN)
    {1} HIV / AIDS
    {2 CANCER
    {3} HERPES
    {4} DIABETES
    (5) HEPATITIS B & C
    6) HERBAL PREGNANCY MEDICINE.
    report


    Contact him via my email address: kakutaspellz@gmail.com
    Mobile Number: +2349054872932
    http://kakutaspellz.wixsite.com/kakutatemple

    ReplyDelete
  7. Thanks to dr.ojoka for his good work I never believe that HIV has cure, I
    was HIV positive over 3 year now before I came across a comment about how
    dr.ojoka cure HIV and herpes disease but when I saw it i have it in mind
    that he can’t cure HIV I just decided to give it a try I contact him that
    night luckily to me he replied me, but I don’t believe him I thought it was
    a scam but I still hold on to see the work of Dr ojoka if he is saying the
    truth he ask for some details about me i gave him all he needed and I
    waited to see his reply to my problem after all, he told me to go for check
    up and I went for HIV test I cant believe I was negative,am so happy and
    grateful to God for using Dr ojoka to cure me, that is the reason why i
    decided to write this wonderful testimony of our i was cured, i recommend
    Dr.ojoka to you all around the world,contact him on his Email dr.ojokarootandherbal@gmail.com or you can also reach him through thanks whatapp number +2348144172934
    dr.ojoka for helping me at this young age if you need help contact,
    He can also cure so many sickness like
    (1) herpes(2) hiv(3) als(4) dick enlargement(5) hepatitis B(6) ALOPECIA(7) CANCER,(8) DIABETES,(9) HERPES CURE(10) GETTING YOUR LOVER OR HUSBAND BACK(11) IMPOTENCE,(12) BARENESS/INFERTILITY(13) DIARRHE (14) ASTHMA

    ReplyDelete
  8. attention you all,i don't just know the reason why some people is finding it difficult to believe that there is a cure for HIV, i have been HIV+ since last three years with my boyfriend but today i am happy that i am HIV_ with herbal medicine of Dr.Emmanuel the great healer,i was browsing the Internet searching for help when i came across a testimony shared by someone on how Dr.Emmanuel cure his HIV i was so much in need of getting his treatment but after all Dr.Emmanuel brought a smile to my face with his herbal medicine. i am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer on his email address: Traditionalherbalhealingcentre@gmail.com please sir keep your good work cause there are people out there who is in need of your healing medicine.once more contact him now: traditionalherbalhealingcentre@gmail.com or WhatsApp/call him at +2348140033827 once you get inturch with him tell him that i Tracy inform you about is ambition work.good lucky....

    ReplyDelete