Saturday, April 10, 2010

TAKING ACTION (23 week old)


For me, one of the most challenging aspects of Cutaneous JXG is dealing with the feeling of powerlessness over this condition. Once the biopsy results come back and the doctor explains what it is and says: “we are going to keep a close eye on it” (meaning a follow up every 3 month with him and another one with the ophthalmologist), we think: “that’s it?. It can’t be”. So, most of us get home and launch into the internet to conduct our own research. After we absorb tons of info to the point that our brains become like mushrooms and we confirm that the doctor was right, we are still not satisfied. Now we look for a 2nd, a 3rd and even a 4th opinion! Besides some differences in tests (some doctors order more than others), they all tell us the same: “Wait. Be patient. It will go away in a few years” and this time our inner voice whispers “easier to say than to do”. After I posted a few articles on this blog, many of my dearest friends asked how they could help? What they could do?. Besides telling them to donate money in honor of Santiago to the Histiocytosis Association of America or the Histio Heroes Research Fund I did not know what else to offer. At that point that was the only thing I did but I knew it should be more. The last couple of weeks I searched other organizations and I discovered many other ways to fight back. I was ecstatic to see that so many people around the country are working very hard to find a cure and that I did not need to re-invent the wheel. I just needed to create a place where all these wonderful ideas could be easily accessed and this is how the “Take Action” section of the blog was born. As indicated there, some of these avenues do not take more than two minutes and many of them are free. I have tried all of them and even though some have not paid back yet, they made me feel empowered and not alone. I understand that all these efforts will not have a direct impact on my baby’s condition but they will help someone else's child in the future and that is a great sensation to have. In those days when it is obvious that impatience is winning the battle, my husband says: “Remember babe, a watched pot never boils” and a smile is drawn in my face immediately. Hopefully, by taking part in some of these efforts, we will not feel like the JXG pot takes forever to bubble.

27 comments:





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    1. My husband left me for another woman three months ago and ever since then my life have been filled with pains sorrow and heart break because he was my first love whom i have spent my entire life with. A friend of mine told me he saw some testimonies of a spell caster called Prophet Lucky that he can bring back lover within some few days, i laugh it out and said i am not interested but because of the love my friend had for me, she consulted the great priest on my behalf and to my greatest surprise after 2 days my husband called me for the very first time after three months that he is missing me and that he is so sorry for every thing he made me went through.He came back to me and now we are happy together. I still can’t believe it, because it highly unbelievable. Thank you Prophet Lucky for bringing back my lover and also to my lovely friend who interceded on my behalf, for any one who might need the help of this great priest here is the email address: luckyspelltemple@gmail.com or His Website: https://luckyspelltemple.wordpress.com

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    2. my name is Dwunica Julia. my life is full of joy because Dr OTOIDE asked me to be happy What happened to me is not what i can keep only to myself but to also tell the world so that those that were once like me will get there love ones back and been happy once again. I and my lover had some issues which leads to our break up since after then my life has never been the same i tried all method to get Him back but they were just waste of effort and waste of time. But one day during my search on the Internet i came across someone testimony about Dr OTOIDE helped him to get his lover back so i contacted His email:drotoidesolutiontemple@gmail.com and to my greatest surprise Dr OTOIDE was able to bring back my lover within 23hours. With the great thing that happened in my life i decided to tell the whole world about this great man called Dr OTOIDE. For those in need of anything he told me that in his temple there is know impossibility now i believe him so much friends if you need help kindly contact him via email:mail:drotoidesolutiontemple@gmail.com or call him through his mobile number:+2347089081873 or contact him directly through his website:https://drotoidesolutionte.wixsite.com/dr-otoide

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    5. Hi everyone, i am Chloe Raymond am so glade coming back to this great forum to testify about the help i received from Chester Brian. I was in desperate need of a loan in other to be free from debt and financial bondage that was place on me by my ex husband. It was really bad that i have to seek for help from Friends,family and even my bank but on one could assist me because my credit score was really bad. So i was browsing with my computer and saw some testimonies from people Chester Brian assisted with a loan, then i decided to contact him on his email BRIANLOANCOMPANY@YAHOO.COM, then i received a mail from them and i did all that was asked from me. To my greatest surprise they transferred to my account the loan i requested and now i am so happy clearing my debt and have also started a business with the remaining amount to take care of myself and family. If you need a loan do contact the best loan lender of all time Chester Brian on his email: BRIANLOANCOMPANY@YAHOO.COM or Call/Text +1(803) 373-2162

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  3. i am here to give testimony of how i got back my husband, we got married for more than 9 years and have gotten two kids. thing were going well with us and we are always happy. until one day my husband started to behave in a way i could not understand, i was very confused by the way he treat me and the kids. later that month he did not come home again and he called me that he want a divorce, i asked him what have i done wrong to deserve this from him, all he was saying is that he want a divorce that he hate me and do not want to see me again in his life, i was mad and also frustrated do not know what to do,i was sick for more than 2 weeks because of the divorce. i love him so much he was everything to me without him my life is incomplete. i told my sister and she told me to contact a spell caster, i never believe in all this spell casting of a thing. i just want to try if something will come out of it. i contacted Zuma Zuk for the return of my husband to me, they told me that my husband have been taken by another woman, that she cast a spell on him that is why he hate me and also want us to divorce. then they told me that they have to cast a spell on him that will make him return to me and the kids, they casted the spell and after 1 week my husband called me and he told me that i should forgive him, he started to apologize on phone and said that he still live me that he did not know what happen to him that he left me. it was the spell that he Zuma Zuk casted on him that make him comeback to me today,me and my family are now happy again today. thank you Zuma Zuk for what you have done for me i would have been nothing today if not for your great spell. i want you my friends who are p***ng through all this kind of love problem of getting back their husband, wife , or ex boyfriend and girlfriend to contact spiritualherbalisthealing@gmail.com or call +2349055637784. and you will see that your problem will be solved without any delay.

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  4. My husband left me for another woman three months ago and ever since then my life have been filled with pains sorrow and heart break because he was my first love whom i have spent my entire life with. A friend of mine told me he saw some testimonies of a spell caster called Prophet Lucky that he can bring back lover within some few days, i laugh it out and said i am not interested but because of the love my friend had for me, she consulted the great priest on my behalf and to my greatest surprise after 2 days my husband called me for the very first time after three months that he is missing me and that he is so sorry for every thing he made me went through.He came back to me and now we are happy together. I still can’t believe it, because it highly unbelievable. Thank you Prophet Lucky for bringing back my lover and also to my lovely friend who interceded on my behalf, for any one who might need the help of this great priest here is the email address: luckyspelltemple@gmail.com or His Website: https://luckyspelltemple.wordpress.com

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    ReplyDelete
  6. my name is Dwunica Julia. my life is full of joy because Dr OTOIDE asked me to be happy What happened to me is not what i can keep only to myself but to also tell the world so that those that were once like me will get there love ones back and been happy once again. I and my lover had some issues which leads to our break up since after then my life has never been the same i tried all method to get Him back but they were just waste of effort and waste of time. But one day during my search on the Internet i came across someone testimony about Dr OTOIDE helped him to get his lover back so i contacted His email:drotoidesolutiontemple@gmail.com and to my greatest surprise Dr OTOIDE was able to bring back my lover within 23hours. With the great thing that happened in my life i decided to tell the whole world about this great man called Dr OTOIDE. For those in need of anything he told me that in his temple there is know impossibility now i believe him so much friends if you need help kindly contact him via email:mail:drotoidesolutiontemple@gmail.com or call him through his mobile number:+2347089081873 or contact him directly through his website:https://drotoidesolutionte.wixsite.com/dr-otoide

    ReplyDelete
  7. I have been in marriage for 13 yrs with no child of my own and my husband loved me so much that he never do things without me. We do almost everything together and that made my marriage so romantic and interesting for me but i have always worried about having my own kids even if it's just one. My husband never seem to be worried or talked about it and it bothered me so much. I am really short of words of what happened later but i will try to put it in a short note because it's my greatest joy on earth. Few years back my husband fell into the hand of a gold digger who tried to take him away from me. This lady manipulated my husband and he took her side and left home to stay with her for almost a year i was alone crying day by day waiting for him to call me and come back home until it got so bad that I couldn't bear it anymore and i was about giving up on him because of these online Fake spell casters and Scams who rip off my money. This is certainly a shocking and genuine living Testimony of mine and it does goes on right now in my life. I came across some suggestions and i was convinced to work with this man after i expressed what i have been passing through to DR MUNA. He told me what i needed to know and requested for an ancient items he needed to work for me I cant get those items myself and i sent him some money for him to help me and hoping this is another Scam. But when DR MUNA called me and told me he is done with my work. My husband came back home with a surprised apology gift. I had him back and right till this moment we have loved each other again more and more and i am 6 months pregnant and i will be having my third child soon. This is an extraordinary blessing and to all soon to be a mother I am telling you nothing but my true life story and here his email ID marvelspelltemple@gmail.com Whatsapp contact +2348071660388

    ReplyDelete
  8. I have been in marriage for 13 yrs with no child of my own and my husband loved me so much that he never do things without me. We do almost everything together and that made my marriage so romantic and interesting for me but i have always worried about having my own kids even if it's just one. My husband never seem to be worried or talked about it and it bothered me so much. I am really short of words of what happened later but i will try to put it in a short note because it's my greatest joy on earth. Few years back my husband fell into the hand of a gold digger who tried to take him away from me. This lady manipulated my husband and he took her side and left home to stay with her for almost a year i was alone crying day by day waiting for him to call me and come back home until it got so bad that I couldn't bear it anymore and i was about giving up on him because of these online Fake spell casters and Scams who rip off my money. This is certainly a shocking and genuine living Testimony of mine and it does goes on right now in my life. I came across some suggestions and i was convinced to work with this man after i expressed what i have been passing through to DR MUNA. He told me what i needed to know and requested for an ancient items he needed to work for me I cant get those items myself and i sent him some money for him to help me and hoping this is another Scam. But when DR MUNA called me and told me he is done with my work. My husband came back home with a surprised apology gift. I had him back and right till this moment we have loved each other again more and more and i am 6 months pregnant and i will be having my third child soon. This is an extraordinary blessing and to all soon to be a mother I am telling you nothing but my true life story and here his email ID marvelspelltemple@gmail.com Whatsapp contact +2348071660388

    ReplyDelete
  9. I recently saw a testimony about a spell caster of some sort in a blog I visit for relationship and dating counseling problems because i had been having serious issues with my husband and we had been married for 3 years,he just suddenly changed, he was returning my calls ,he started cheating, he was hurting me in so many ways i never thought possible and I just thought I should try it maybe out of desperation of some sort ..and I think for a thought about the spell caster called DR UGO WONDERS I contacted him At first everything felt dreamy and unbelievable, their consultations and solution was a little bit easy and strange and I was scared a little cos I heard read and heard lots of stories of fake spell casters, scams and i never really believed in magic.. I played along with a little hope and and faith and I was sent some few stuffs after everything and it worked like a miracle, everything went to a while new direction, I guess it was all good faith that made me read That particular post that faithful day.. I hope they could help other people too like they did a little and I got everything I wanted and wished for my husband, my family and my life back to contact the DR UGO WONDERS through is email and cell number at :::  generalspelltemple@gmail.com or his mobile number on +1 386-336-9876 

    ReplyDelete
  10. Hi everyone, i am Chloe Raymond am so glade coming back to this great forum to testify about the help i received from Chester Brian. I was in desperate need of a loan in other to be free from debt and financial bondage that was place on me by my ex husband. It was really bad that i have to seek for help from Friends,family and even my bank but on one could assist me because my credit score was really bad. So i was browsing with my computer and saw some testimonies from people Chester Brian assisted with a loan, then i decided to contact him on his email BRIANLOANCOMPANY@YAHOO.COM, then i received a mail from them and i did all that was asked from me. To my greatest surprise they transferred to my account the loan i requested and now i am so happy clearing my debt and have also started a business with the remaining amount to take care of myself and family. If you need a loan do contact the best loan lender of all time Chester Brian on his email: BRIANLOANCOMPANY@YAHOO.COM or Call/Text +1(803) 373-2162

    ReplyDelete