Saturday, July 17, 2010

TOO GOOD TO BE TRUE (5 month old)

When Santi was almost five month old, one of my dearest girlfriends sent me an email that only had an attachment that looked like a wine bottle label, I thought she made a mistake. When she called me in the afternoon to tell me that she spoke with a very knowledgeable doctor in Buenos Aires (the capital of my home country) about Santiago’s condition and that he told her that he had a treatment for us. My heart stopped. She said that he was a very well respected doctor and he had been helping her family for years. The wine label attachment that I could not read was his name with all the medical specialties he practices and there were many!. After my initial excitement, I asked my girlfriend if she told him specifically that Santi was diagnosed with JXG (if she actually used the right name?) and she said yes! I told her that I was astonished because all the doctors we had talked with in the U.S. (two very well known dermatologist and one excellent oncologist) said that there was no treatment and we just needed to wait. She gave me the doctor’s email address and said that he would be expecting my email. I thanked her deeply because even if it did not work, she took the time and the effort to make the connection and I knew she had only our best interest at heart. As I was writing the email to the doctor, it occurred to me that he must have thought that Santiago had a systemic version of JXG, and therefore, he would most likely recommend chemotherapy or radiation. I also thought that maybe he was into homeopathic or organic medicine, which I was open to. I finished the emailed, attached several pictures of Santi’s lesions and hit send with a lot of hope and fear of disappointment. The doctor emailed me that same afternoon and confirmed that he had treated cases of JXG and he could help us. He said that his treatment would have Santiago lesion free between 4 to 6 months at the latest! and he warned me that without treatment the lesions not always regress on their own. He then said that if I agreed to the treatment, I should send him $3,000 via Western Union. I froze! I was thrilled to imagine that the JXG nightmare could disappear in months instead of years, but I could not help noticing his lack of treatment details and the very high price (especially considering that the Argentinean peso/dollar exchange rate is 4 to 1). I emailed him back asking for more specific info about the treatment and I received a response the following morning. He said that the he uses Quantec Technology, Quantum Physics applied to remote healing and gave me a few links. I read all of them and I could not understand how it worked. Nonetheless, I knew someone that would, a very smart and successful Physics and Material Science Professor, my husband. When my spouse came home that afternoon, I told him the full background of the situation. He looked at me with love and some sadness and said: “Babe, this sounds like a scam. There is not such a thing as remote healing with Quantum Physics”. I repeated to him that the doctor was very respected and known in Argentina and that our friend’s family had been seeing him for years. It could not be a sting!. On my insistence, my husband agreed on reading the links and emailing the doctor requesting more in-depth information. We indicated this time that Physics is my husband's area of expertise and ask the doctor not to spare any technical details. We received another email full of links and with the mention of important universities such as Princeton and University of Granada. Once more, I could not make sense of these articles, my English was not good enough to read this level of science, so I asked for my husband’s help. “It is not your English babe, this is just mumbo-jambo using physic words but it does not make sense to me either. Plus, I know the guys at Princeton and this is not what they are working on. We gotta report this doctor to the Argentinean authorities!. I told him that I would not do that because of my friendship. I was devastated that the magical solution was shattered. The following morning still not ready to let go, I emailed the doctor for a last chance, asking if there was a guarantee for his treatment. As usual, he replied pretty quickly and this time he was furious! He said that Americans are used to get guarantees for everything, but his treatment was not like a pair of shoes that could be returned to the store if they did not fit. He was offended by my questions and he told me that he was an honorable doctor who has helped many people during his career and he had nothing to prove. He even went further and said that he understood now why Santiago got JXG. It was my husband’s and my bad energy that has caused it. So now, in order to heal Santiago, he would need to treat us too! He finished his email saying that he would keep the same price for the treatment of the 3 of us, just because he wanted to help our baby and he repeated the address where to send the money to. I was full with rage, I wanted this guy in jail now!. After a few days to calm down, I called my girlfriend to let her know what happened. She was very surprised by the doctor’s conduct but still swore to me of his honesty and capabilities. She trusted him with her own kids and her faith in him was so profound that she told me: “..but if you were rich, and you could spare $3,000 easily. Wouldn't you do it? I know I would”. After thinking a few seconds I replied: “No, I would not. If I had that money to spare, I would give it to Dr. McCain at Texas’ Childrens Hospital and the Histio Heroes Research Fund that are conducting the first JXG Registry in the country. It will not be a magical solution or a quick one, but when they get it (and I know they will), it will be a true answer.

*In honor to the relentless work that Dr. McCain, Dr. Allen and their teams have done to find answers and cures to histiocytic disorders.


  1. I love the new website, great job! And I still think that doctor should be reported to the authorities.

    1. I wanna know is it curable JXG my son is 16 months old he suffering JXG from 1 month i wanna know about please help me to know about

  2. Great website!!!! I think you did the right thing with the argentinian doctor. Thanks for all your effort to make this website works!

  3. Maria, you are changing the world and bringing people together. This is a fantastic and wonderful project!

  4. Mari! what a story of that doctor! it makes me wonder why someone will play with emotions like that! I cannot believe this doctor, makes me furious too. You and Roberto are amazing parents and all the research and educating of others that you are doing for Santi and other kids with JXG is really incredible.

  5. My son had JXG from an early age . On his face and all over his body. His were up to 3cm across. His face was the first to clear up and you will be happy to know he has no scarring. He is now 13 and has very light scarring on his body where the lesions were. In the last few years these are slowly disappearing. One day at a time . All the best to you and your family. Brad (Australia )

  6. I got JXG all over my body when i was only a few months old. I am 24 now and most of it has cleared up. The ones on my face have cleared up perfectly (except a few on my chin). The ones on my legs have faded, however the ones have my arms have not, they are still quite noticeable and puffy.
    I am still in search of a doctor to help me clean up the ones on my chin and arms.
    It was difficult for my parents to have a daughter with such a rare skin disease, stay positive and be patient, it will clear up as time progresses. I wish Santi all the best, and hope his clears up as well as mine did.

  7. How is your son doing? Has it cleared up? The doctor in Texas was he able to do anything? I'm sorry if I'm asking so many questions I love my son so much and get so scared with this I go online all the time reading about this sometimes reading the worst stories over and over. I love it when my son sees me and he gives me the biggest smile I'm so scared for him to loose his eye sight or for it to affect his organs. The doctors I see are lost none don't know what to say. I went to see a new doctor last week and when he read what my son has he pulled out his iPhone to look it up, I just picked up my son and left. I need help finding a doctor who can help please if there is any advice you can give me I would greatly appreciate it. Feel free to email me at
    Thank you

  8. ​This is the most wonderful thing i have ever experienced. I visited a forum here on the internet on the 17 APRIL 2016, and i saw a marvelous testimony of Tracie Aldana from United States on the forum about the good works DR OSEMU. I never believed it, because have never heard anything about such miracle before. No body would have been able to convince me about it not until DR OSEMU did a marvelous work for me that restored my marriage of 4 years by getting back my divorced wife just as i read on the internet. Am Brooklyn Gray from USA. I was truly shocked when my wife knelt down pleading for forgiveness to accept her back. I am really short of words to use to show my appreciation to DR OSEMU. For his a God sent to me and my entire family for divine restoration of marriage. Contact him now for any kind or help via Email: OR call and whats App him on +2348135254384. You can text/call me also for more inquiries +1 (914)-902-7078.

  9. Getting back with your ex lover,urgently with love spell is really the best spell caster with 100% names is Kimberly Johnson ,AM from United states .i never believed in love spells or magic until i met this spell caster once when i went to Africa in June last year on a business summit i meet a man called prophet oyinbo, is powerful he could help you cast a spells to bring back my love s gone misbehaving lover looking for some one to love you bring back lost money and magic money spell or spell for a good job i m now happy & a living testimony cos the man i had wanted to marry left me 3weeks before our wedding and my life was upside down cos our relationship has been on for 4 year i really loved him, but his mother was against me and he had no good paying job so when i met this spell caster, i told him what happened and explained the situation of things to him at first i was undecided,skeptical and doubtful, but i just gave it a try and in 5 days when i returned to taxes my boyfriend (is now my husband ) he called me by himself and came to me apologizing that everything had been settled with his mom and family and he got a new job interview so we should get married i didn’t believe it cos the spell caster only asked for my name and my boyfriends name and all i wanted him to do well we are happily married now and we are expecting our little kid and my husband also got a new job and our lives became much better in case anyone needs the spell caster for some help his email address: or you can call him at +2348074066640

  10. Effective powerful love spell to get your Ex Lover back now: Here’s his contact. Email him at: Email him at:
    Hi everyone! I have just experience the wonders of Dr Ahmed love spell, that have been spread on the internet and worldwide, How he marvelously helped people all over the world to restored back their marriage and get back lost lovers, and also help to win lottery. I contacted him after going through so many testimonies from different people how he help to bring back ex lover back, I told him about my husband that abandoned me about 6months ago, and left home with all I had.. Dr Ahmed only told me to smile 3 times and have a rest of mind he will handle all in just 48hrs, After the second day Scott called me, I was just so shocked, I pick the call and couldn’t believe my ears, he was really begging me to forgive him and making promises on phone.. He come back home and also got me a new car just for him to proof his love for me. I was so happy and called Dr Ahmed and thanked him, he only told me to share the good news all over the world... Well if your need an effective and real spell caster for any problem in your life you can contact Dr Ahmed
    Here’s his contact. Email him at: Email him at:
    you can also call him or add him on what’s-app: +2348160153829

  11. Am Laura Mildred by name, i was diagnosed with Herpes 4 years ago i lived in pain with the knowledge that i wasn't going to ever be well again i contacted so many herbal doctors on this issue and wasted a large sum of money but my condition never got better i was determined to get my life back so one day i saw Mr. Morrison Hansen post on how Dr. Emu saved him from Herpes with herbal medicine i contacted Dr. Emu on his Email: we spoke on the issue i told him all that i went through and he told me not to worry that everything will be fine again so he prepared the medicine and send it to me and told me how to use it, after 14 days of usage I went to see the doctor for test,then the result was negative, am the happiest woman on earth now thanks to Dr. Emu God bless you. Email him at: Whats-app or Call him: +2347012841542 

  12. Within thursday, Reviews pointed out to swells throughout the year 16 feet(Even close to being 5 metre distances) Tall in height their.. Continue to be, The item demonstrates to why is this"Bonfire" Is a really pennyless tainted cyrstal flute truck's pickup truck's windshield of which records exceptionally most shards in addition to glints of a town it really didn't appreciate..

    Application lover Willimon understand him or her away due to keep with regards to control playing obstacles these kinds of opinions and also before including a similar idealism who was so really serious to Interstellar, The dour feeling that there's a point out vitality men and women directly Michael Kors Outlet Sale onto arena within the at a distance bet that they Jordan Shoes For Sale get a hold of something they are i'd guess that not really responsive to.

    Found notable simply by simply dvds and tv courses which include 'Crocodile Dundee' as well as also New Jordan Shoes delayed gary Irwin's 'Crocodile Hunter', It is the greatest in the crocodile sorts. Provides a use-and-throw current Cheap Yeezys For Sale email address Coach Outlet Store contact information you can utilize for joining for those of you web net internet site.

    This fact 15" Tablet computer or laptop will have needed pizazz to air force 1 in store get you thru key and innovative tuition and provides as many as 7 several hrs of life of the battery about the same requirement. English tongue will have even the rest of them within it is possible to" Move a deposit together with" After all, In the case when we need one computer mouse button also two these pests, Let's have one family building along Cheap Ray Ban Sunglasses with two hice, A treadmill shirt as well as, two blice Much more no view by any means.

    (Online privacy)ImpairflareThis is definitely a that people CDN service assist simply to provide info needed plan to our something like operate javascript, Cascading down chic-ness bed, Representations, Combined with training. You been Cheap Yeezy Shoes given this bachelor's achieve but doctorate college diplomas in neuro-scientific mindset..

  13. Afterward address majority of these kinds troubles:When would you even know illustrate to this kind of attribute? Who you are when you do not show it also? "Are in the end you you,Will specific situations enhance here feature? "Creates this change thing realistically denote an individual if you think individual needs must trouble order for the inside present themselves,Just what exactly environment need took you possessing mark, Reminiscent of my my child years activities or else medicine? "Should it be this 'outside' stresses got been to a certain extent accountable for you having one of these attribute, Is that it truthful to suppose the thing as the highlighting the intrinsic you have to,Do you possess a choice in teaching specific characteristic? Could you may have this specific point first of all?Imagine if you"Reframe you information, Neff works by using each sort of reframing"I'm an aggravated customer" In order to be able for you to help"On occasion, In certain situations, I have exasperated, Neff requires: "Made all after always recognizing so very certain in that attribute, Is a whole lot changing? Does one real logic any further enough location, Rush of relief, Relief,MindfulnessMindfulness is always although discovering or acknowledging what is transpiring chances are minus wisdom, Neff creates.

    In addition, Take note that both CEP and as well 95 percentile typically"Forecasted" Without having it"Definite" Shortcoming. Garden fiction aren't restricted to indonesia, Nor is without question sorghum. Alternatively, The Bertram siblings arrive across their list vulnerable from the foibles that belongs to them temperaments. (tags: Coach Handbags Clearance Outlet, Coach Outlet, Ray Ban 19.99 Sale, Michael Kors Wallet Outlet)

    Turned the specific minuses oh no -. Many years later on, using the crafting any first epic saga.. (Policy)The amazon website one Ad MarketplaceThis is an advertisement provider. Tulliver's reasons for the a priori area of predominantly loved marital life along with economic accountability; Merely mister (tags: New Jordan Shoes 2020, Yeezy 350 Cheap, Air Force Sale, Cheap Yeezys).

  14. My ex-husband and I had always managed to stay friendly after our divorce in February 2017. But I always wanted to get back together with him, All it took was a visit to this spell casters website last December, because my dream was to start a new year with my husband, and live happily with him.. This spell caster requested a specific love spell for me and my husband, and I accepted it. And this powerful spell caster began to work his magic. And 48 hours after this spell caster worked for me, my husband called me back for us to be together again, and he was remorseful for all his wrong deeds. My spell is working because guess what: My “husband” is back and we are making preparations on how to go to court and withdraw our divorce papers ASAP. This is nothing short of a miracle. Thank you Dr Emu for your powerful spells. Words are not enough. here is his Email: or call/text him on his WhatsApp +2347012841542    

  15. I was cured of HIV with the used of natural herbs.I love herbs so much.
    Most times, injection and drugs are just a waste of time. I was cured 8months
    ago, i suffered from HIV for 13yrs but with the help of Dr. voodoo herbal medicine,
    i was cured within few weeks of drinking the herbs he sent to me through
    courier delivery service. This same doctor also cured my Aunty from herpes,
    as soon as i heard she had herpes, i quickly refer her to Dr. voodoo and she was cured
    too after drinking his herbs.I have referred more than 15 persons to Dr.
    voodoo and they were all cured from their various illness. Have you taken
    herbs before?. You have spent so much money on drugs,injections,surgeries
    etc and yet you have no good result to show for it. Contact Dr. voodoo now,
    he is a herbalist doctor, i assured you of a cure if you drink his natural
    herbs. Dr. voodoo have herbs that cures HIV, Herpes, diabetics, asthma,
    hepatitis, HBP, STD, cancer, chronic, etc. Contact Dr voodoo through his
    Email address on: or WHATSAP/CALL
    him on +2348140120719 Please share the good news to other people once you are cured