Juvenile Xanthogranuloma (JXG) Online Support
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Tuesday, March 8, 2011
How the Histiocytosis Association of America supports JXG research by Jeff Toughill
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It is so wonderful to see how this special group has come together in support of JXG patients. A BIG thank you to Maria Jose Diaz Frias for...
207 comments:
Saturday, July 17, 2010
TOO GOOD TO BE TRUE (5 month old)
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When Santi was almost five month old, one of my dearest girlfriends sent me an email that only had an attachment that looked like a wine bot...
27 comments:
Saturday, April 24, 2010
JXG CHAMPS (30 week old)
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Becoming aware of other family’s JXG stories has been one of the most crucial components in accepting my baby’s condition. When we just rec...
55 comments:
Saturday, April 10, 2010
TAKING ACTION (23 week old)
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For me, one of the most challenging aspects of Cutaneous JXG is dealing with the feeling of powerlessness over this condition. Once the bio...
57 comments:
Thursday, April 1, 2010
MY WISH LIST (18 to 22 week old)
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This picture was taken the day that Santiago rolled over for the first time. My husband and I were waiting for this to happen for a while, ...
48 comments:
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